Alice V. Patient Expert

Johannesburg, South Africa
I am a 23 year old with Cystic Fibrosis. However in january of this year I underwent a bi-lateral... Full Bio
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22 months today with new new lungs on the 22nd! by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Today is a very cool lungaversary date-wise, as I'll never have a 22 month one on the 22nd again! Had a pretty relaxing weekend, spend some time with Jolandi (who got her lung ... Read on »
What a week!!!! by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis And not in a particularly good way! This week's been so rough I've barely had a chance to breathe. Work's been CRAZY BUSY, weather's been MISERABLE (hasn't gone above 20 degre ... Read on »
New layout! by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I thought seeing as my old layout was a bit dark, I've picked a new one for summer!!!! Still working on it, so might change a bit... Read on »
Happenings by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Wow can’t believe last time I blogged was Sat, feels like yesterday. What can I report on? Chris and I finished house-sitting on Tuesday evening, and seems like he has a ... Read on »
Lots of news and happenings by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis ANOTHER CF’ER FRIEND GOT LUNGS!!!!!!!!!!! Louis, who lives up here and whom I’ve often visited in hosp finally got his lungs on Wednesday! He’s waited more t ... Read on »
NOVEMBER!!!!!! by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Wow October flew past!! In two months this time we'll be celebrating New Years Day! Had a great weekend again, Yesterday I had breakfast with Cristy, a friend from church. Wen ... Read on »
21 months today... by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Hope that still gets to be 21 YEARS :-) How awesome would that be???? Week's been going well, FLEW past! Went to gym before work TWICE, pretty impressed with myself. Went to v ... Read on »
Update on Jolandi and week... by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Jolandi's been having a bit of a rough time :-( She was put back on the vent after being taken off it after less than 24 hrs after the op! Also, last night she coughed and a c ... Read on »
SOMEONE GOT LUNGS!!!!!!!! by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I'm SOOOOOOO excited!!!!! Another (first for the year) CF woman had her transplant!!!!!! She's 31 years old, and I'm so happy another woman had a tx... The last one was ME, wh ... Read on »
Post #401! and CF Scholarship by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis OK lots to catch up on! I'm so tired after spending half the day being filmed today for a TV show called The Power Within on SABC3 (will let you know exactly when it will be a ... Read on »
First Afternoon Thunderstorm of the Season... by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis We've just had our first OFFICIAL afternoon thunderstorm! (We had rain a while back, but it was at night...) While most people love these afternoon thunderstorms (except for w ... Read on »
Chris's birthday :-) by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Yesterday was Chris's birthday!!!!!!! He turned 26 on the 26th :-) Happy birthday babe and may the year ahead be the best one EVER!!!! *MWAH* The past few days have been good ... Read on »
20 months today! by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Don't have much to day, just that it's been 20 months of easy breathing today!!!!!!!!!! Read on »
1 month after the Games and mom's visit... by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Been a rather busy week, which is why I haven't blogged for a week! My mom arrived on Thursday night, and I decided on the last minute to take Friday afternoon off! So we had ... Read on »
Sunday Afternoon Blues by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis It's that time of the week again... Sunday afternoon :-( At least my mom is coming up this week, on Thursday evening, and she's staying for quite a while. And NEXT week has go ... Read on »
090909 by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Don't have much to report on, but thought it's a good day to have a post! With the date being all cool and that :-) Have recovered from my jet-lag and gastro experience, adap ... Read on »
What a week!!!! by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis It's been crazy back at work, so much to catch up on! Our apartment, or more specifically MY ROOM has been a mess, as we've been hit with spring weather here, so I'm packing a ... Read on »
My birthday and back in SA!!!!!! by Alice V. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I'm 25!!!!!!!! Quater of a centuary old today :-D Obviously wouldn't have been here without the new lungs, so very grateful for every birthday... feeling like a child about bi ... Read on »