Johnson Steven Syndrome - Articles
I'm Baaaack!
by
Stephanie
Well, I learned the lesson this past week that I should have braved the toothache pain along with it's drug induced giddiness and posted Halloween pictures. This would be because two days later on November 2nd, Ryan turned 6 and in my Happy Birthday picture frenzy I made a horrible mistake....... I erased the Halloween pictures! Aaahhhhh!Way to go ...
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More ROHHAD Children
by
Haveyroo
It seems like about every two weeks I find another ROHHAD family. This time there are 2 new ones. They found my site I created on facebook for ROHHAD Syndrome and I was able to check her web site. CLICK HERE for Twin Cin-City -- her child is currently with Dr. Weese-Mayer The other lady's name is Trina - from Newfoundland. I don't know much abou ...
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River
by
Rachel M.
Life goes on like river flowsThings are changing at nobody’s faultWhen you need me again,you will find meBecause our souls have connected once beforeMy dear friend,Your life must go on like river flows Posted in Life, ME/CFS, Poem & Haiku
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Primetime TV Shows More Violence Against Women
by
Barbara C.
Interesting that all today's aging feminists care about is increasing abortion and funding it with taxpayer dollars.As one of the Founding Mothers of the Second Wave of Feminism, I am appalled that they sold out to the sexual exploitation of women in all its forms - including dressing little girls as prostitutes, encouraging teenage promiscuity, br ...
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What You Need To Know About Acid Reflux Disease
by
Jan
What You Need To Know About Acid Reflux Disease - By: Gloria Fanz Acid reflux is also known as the Gastroesophageal Reflux Disease (GERD). Some people simply describe it as heartburn because of the burning effect of the condition experienced by the patient. Essentially, acid reflux is a disorder in which the acid contents in the stomach back up int ...
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Opthamologist
by
Lisa
Finn had a regular follow-up appointment with the pediatric opthamologist today. It was a complete non-event, which I guess is good. Everything looks good, he seems to see just fine, and the doc didn't mention anything about the apparent smaller optic nerve that he made note of 9 months ago. Whatever. Sometimes I feel like we're just going thro ...
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Checking off the Medical Appointments....
by
Paula Burckhard
As the days go on, I am able to check off the medical appointments needed for both Bella and Grace. Today, with the help of our Jen, we headed off for Grace to have her blood drawn to check up on her thyroid. She has been complaining of being tired lately. She says "I not sick, I tired!" And her gym teacher said she is wanting to go off a ...
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~ Day -7 ~
by
cancerisnotanoption
Today is day -7, and I have completed two out of three days of chemo. I had my chemo early afternoon, the fluids that they continuously give you make you go to the bathroom non stop, so having it early in the day was good, I might get some sleep tonight. I am still feeling pretty well, the chemo gave me a bit of a stomache but it resolved. The kid ...
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Would You Say Something.... (Part 1)
by
Stephanie B.
Let's say that you are shopping in a major retail store. And you have a question about something. Say the sales person who was helping you said something was "retarded" and did not mean it in the medical terminology. Do you, as a parent to a special needs child, say something?
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