Syringomyelia - Articles
2nd Annual Miracle Race was a success!!
by
Debbie
The 2nd Annual Miracle Race for Mylee Grace and her Chiari & Syringomyelia friends was a success! We are grateful for your support this year. Thank you very much for providing Mylee and her attendees the support necessary to have a succ ...
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2nd Annual Miracle Race was a success!!
by
Debbie
The 2nd Annual Miracle Race for Mylee Grace and her Chiari & Syringomyelia friends was a success! We are grateful for your support this year. Thank you very much for providing Mylee and her attendees the support necessary to have a succ ...
Read on »
IT IS NOT ALL IN YOUR HEAD
by
Taffy
... ll in your head” They are right it is in our heads but it is real.One MRI scan is worth a thousand words…or a hundred doctor visits! Hydrocephalus, Spina Bifida, Syringomyelia, Tethered Cord Syndrome, and Spinal Curvature are related conditions as well as “sister” conditions such as Ehlers Danlos Syndrome. Many Chiarians ...
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'Miracle Race" brings 200 to Tempe
by
Debbie
... r child for this disease,” Eaton said. She said her daughter inspired her to raise money and awareness about chiari and other related diseases. Chiari malformation and syringomyelia are two related diseases that affect the spinal cord and cerebral fluid, said Mark Scarpone, CEO of American Syringomealia and Chiari Alliance Project, Inc. In ...
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Never Give Up
by
Debbie
... our communities about this disabling disease she has been forced to endure – Chiari Malformation. I hope you will join Mylee in her fight to beat Chiari Malformation, Syringomyelia and its related disorders. The 2nd Annual Miracle Race for Mylee Grace and her Chiari & Syringo friends is being held on Sunday, September 20th, 2009 at Kiw ...
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Why I Care
by
One Sick Mother
... e son has Muscular DystrophyMy stepmother, who has Rheumatoid ArthritisStephen Deal, who also has MDElizabeth, who has MSABlake, who has SMAJanice who suffers very badly with SyringomyeliaMy friend Betsy who had Pseudotumor CerebriThe woman from whom we bought this house, who had Parkinson's DiseaseMy friend's ex, who had Bell's PalsyAnother friend ...
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From The Desk Of Dr. Bland: Let's Think About Thinking...
by
Debbie
... d doctor. Cognitive Problems Are Frequently Noted With Chiari Cognitive problems in Chiari 1 Malformation are frequently noted. Dr. John Oro wrote in his article Chiari and Syringomyelia 101 (found on the American Syringomyelia Alliance Project website, www.ASAP.org ) that general symptoms of depression, poor sleep and fatigue are described by hi ...
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June 2009Message from Column of ...
by
Debbie
... With the recurring theme of collaboration, COH finds itself as the major funding source for what may be the study that unlocks the century old mystery of the actual cause of syringomyelia, while helping to continue what appears to be definitive research on determining proper treatment for more Chiari patients, and at the same time advance genetics ...
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Preston
by
Debbie
Preston was diagnosed with Chiari 1 Malformation and Syringomyelia in the Spring of 2008 after suffering from severe headaches...at the age of 6 years old. He underwent posterior fossa decompression in June, 2008. He had a 20mm ...
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What a fantastic Chiari and Syringomyelia conference!! Dr. I did a great job organizing it! Thank you!! I must say, I came home after 3 long days of lectures with my brain FRIED! Not just because of a ...
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