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patientanonymous's Twitter Updates

I shall see you all later after much caffeine post-EEG! *PA dashes off into the night with cape into the air* 7 days ago
SPAZ O.o 7 days ago
Alrighty then! With all of this excitement watch my meds be spazzen and I'll be up later and need to add a Valium and thus get less sleep! 7 days ago
@asdquefty Well, I know the route and it is early enough pre-rush hour? Again, early alarm and quick shower, toss on clothes and off! 7 days ago
@Canageek Thanks. They told me the neuro area but I'm a SPAZ O.o so will probably get lost! I have set my alarm for a good time? 7 days ago
 

My tonic-clonic Temperature Dysregulation! Can’t “Fix” It But I Can “Prove” It?

Posted Sep 11 2009 10:01pm

Now, we’ve got some PA Evidence going on! Hey, you can’t keep a Geeky, Aspie, Medical Researcher down (no matter how shitty she feels?)

This isn’t “Hard Science,” but oh, I think it’s even better! Why didn’t I think about this before? Why? I’ll tell you bloody, well why! Because I think this tonic-clonic really has fried my brain! I mean, I don’t know if J. even owns a thermometer, but duh! *PA slaps forehead that is now feverish*

Not to mention, while screwing around on Google, I found myself on Page One… *rolls eyes* There is a rare thing called post-ictal fever.  This I read about…well, whenever I wrote the post.  And not that this may be it.  No, I think it is, or may be, something else? Something bigger? I’m thinking duration.

Anyway, point being, all I need to do is track my body temperatures, monitor them and make some notes–as if I was using a Basal Thermometer to try and have a baby (which I am not, by the way.)

For example, right now I am running a fever between 101°-102°, my feet are freezing and have been under the duvet for hours–and yet are still freezing.  Normally, PA The Human Ice Cube, should be completely freezing all over.  Especially if she has supposedly lost another 5lbs. and is now down to 95lbs.  My body right now feels just sort of…”average?” Maybe comfortably warm?

I can’t recall what it has been doing all day, as I have been too out of it to pay attention.  You bet I’ll be paying attention now! And I’m sure I’ll be noting some changes? Especially since it sure as hell felt like my body temps. were riding one giant roller coaster last night while I was sleeping!

For a fever that high? If it was consistent all day? If I had an infection, I would have felt chills, been achy all of that.  Now I know none of that’s been going on–no matter how out of it I’ve been.  I’m not sick.

I wish I had thought of this before but it may not matter so much.  Especially if it’s still going on after this long? It may just further prove my point! I believe my body temperature checked out fine when they took me to the hospital.  At least they didn’t indicate anything “alarming!”

Actually, in hindsight, they did do some things wrong when they took me in.  At least one–and it probably might have gotten me some medical attention, as opposed to none. As much as I love paramedics, and you know that I do, these guys screwed up.

For a tonic-clonic with a possible head injury (as I slammed my head on concrete!) they should have put me on a gurney.  The paramedics put me on a gurney before when I had one of my Complex Partials! *PA shakes feverish head*

Well, now that I’ve got this happenin,’ I can take it to Non-Arsey Neuro.  If it doesn’t settle down, then I think I may have a problem? My body temperatures can’t lie! I can now prove that this business is going on!

Which is both a good thing and a bad thing.

But wait.  I thought I’d just try a quick, little, “experiment” now.  And of course this makes sense because in order for my brain and body to co-ordinate all of this, what else is needed? The environment!

I just went outside to smoke a cigarette.  I put a jacket on.  Now how long does it take to smoke a cigarette? Not that long! Taking into account the temperature differences as well, which are 24°C in my flat and 18°C outside, it’s still such a short period of time.

PA became TheHuman Ice Cube outside– instantaneously! Of course it’s also too brief a period for her core body temperature to change, but that’s the problem! Back inside, she’s fine now! Perhaps? Until the next wave of something else?

EDIT: Now I’m HOT!!!

That’s the whole thing though, right? The regulation is completely screwed up! For me to go all freezing and wingy just like that?  Also, I wasn’t like that last night, I had less clothes on and sat out for ages! The weather was exactly the same.  And I’ll bet you, that should my core temperature change, things will remain just as screwy.  I’ll still be having problems.

This may just be the most important post I’ve ever written about my seizures yet!

It looks like Dr. PA is back on duty.

Posted in Asperger's, Facts About Patient Anonymous, Head Injury, Health, Hospitalizations, Medicine, Neat Neuro Stuff, Patient Advocacy, Seizures, Spock, Therapy
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