Carla U. Patient Expert

Somerset, New Jersey
Hi! I'm the "Singing Patient." I'm a comedian/ songwriter who happens to have a diagnosis of a... Full Bio
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The only diet book you'll ever need by Carla U. Patient Expert Posted in: Blog Posts in Lupus Of all the diet books i've read, this one is the most grounded, non-faddish book. it is full of citations (references to research) and matter-of-fact, down-to-earth, solid adv ... Read on »
To sleep, perchance to heal by Carla U. Patient Expert Posted in: Blog Posts in Lupus I've had insomnia for as along as I can remember. If I didn't need to sleep to heal, I just say "who cares" and stay up all night watching Law and Order reruns, or t ... Read on »
Low Dose Naltrexone by Carla U. Patient Expert Posted in: Blog Posts in Lupus OK, so this is the next great hope for autoimmune disease, and I gotta say after 17 years of dealing with the horrible effects of lupus and the equally horrible effects of the ... Read on »
Smoothies- good for you? by Carla U. Patient Expert Posted in: Blog Posts in Lupus In an attempt to get more fruit into my diet, I've been making lots of smoothies at home. I know what goes into them when I make them: fruit, ice, and a little rice milk. That ... Read on »
Book Synopsis: The Last Lecture by Carla U. Patient Expert Posted in: Blog Posts in Lupus I'm a little behind the curve on reading the latest best-sellers. But then that means I can get them at the library or really cheap used. So, I finally got around to reading T ... Read on »
What British health care is really like by Carla U. Patient Expert Posted in: Blog Posts in Lupus Here is an e mail from a friend of mine, who is British and has been fighting myeloma for the last year or so. He wanted to et the record straight about government health care ... Read on »
Book Synopsis: Lupus Novice: Toward Self-Healing by Carla U. Patient Expert Posted in: Blog Posts in Lupus Okay, just got done reading another lupus memoir: Lupus Novice: Toward Self-Healing by Laura Chester original copyright 1987; 3rd edition 1999 How strange that I spent my ... Read on »
Book Synopsis: Heartsearch: Toward Healing Lupus by Carla U. Patient Expert Posted in: Blog Posts in Lupus I stumbled on this book via Amazon.com Heartsearch: Toward Healing Lupus by Donna Hamil Talman When I saw the description of the book, I knew I needed to read it, because it ... Read on »
illness and emotions: michael jackson and deepak chopra by Carla U. Patient Expert Posted in: Blog Posts in Lupus Maybe some of you saw on the news when Deepak Chopra was claiming that Michael Jackson's lupus was caused by childhood physical abuse. I have to say this statement was reckles ... Read on »
finding a good doctor by Carla U. Patient Expert Posted in: Blog Posts in Lupus One of my friends just asked me how you find a good doctor. First, i'd suggest checking out a DO (osteopath). they have all the training of an MD but they don't go through th ... Read on »
Did Michael jackson have lupus? by Carla U. Patient Expert Posted in: Blog Posts in Lupus If michael jackson had lupus, he would have to hide it in order to be able to keep working. that's how show biz works. you can't get anyone to insure your tour if you might en ... Read on »
healthy (and not) sunscreens by Carla U. Patient Expert Posted in: Blog Posts in Lupus Folks with lupus are warned to avoid the sun. Sometimes we can't completely avoid it, so we use sunscreen. But some sunscreens are filled with nasty chemicals that are really ... Read on »
wheee by Carla U. Patient Expert Posted in: Blog Posts in Lupus I just signed up to take a class at the PIT (horrible sounding name! but it stands for People's Improv Theater). It's a class on writing one-(wo)man shows. I've had this yen f ... Read on »
Gluten-free pizza!!! by Carla U. Patient Expert Posted in: Blog Posts in Lupus hey you gluten-free pizza lovers! I just got back from Uno's Chicago grill, where I had my first pizza in a restaurant since going gluten-free last fall. Uno's is a national ... Read on »
stresssssssss (and lupus) by Carla U. Patient Expert Posted in: Blog Posts in Lupus just got back from the doctor. sed rate=66, temp= 99.8. :( my strict vegan + gluten free diet is not enough to counteract all the stress. stress? what stress? Well, I got to ... Read on »
neuroma, my foot! by Carla U. Patient Expert Posted in: Blog Posts in Lupus Something is very wrong with my left foot. And I think it has to do with wearing cheap crappy tennis shoes with no arch support. I've either got plantar fasciitis or Morton' ... Read on »
health revolution by Carla U. Patient Expert Posted in: Blog Posts in Lupus Here's a great petition for getting health care back to what it ought to be, in my opinion. Read on »
The Sin of Gluten-y by Carla U. Patient Expert Posted in: Blog Posts in Lupus Just before New Year's I went back on the gluten-free dairy free (GFCF) diet. I'm making great progress with regaining my health. I have almost no headaches anymore- didn't ev ... Read on »
Rocky Steps by Carla U. Patient Expert Posted in: Blog Posts in Lupus One of the important parts of recovery is to celebrate every milestone. So even though it was a week after the event, today we celebrated my fabulous blood tests by going to P ... Read on »
What I Learned at the Conference by Carla U. Patient Expert Posted in: Blog Posts in Lupus I spent several days in baltimore this past week attending a conference called "Thinking Outside the Box"- about re-designing health care. The conference was a joint ... Read on »