Just a quick note to say that I haven't dropped off the face of the earth. It has been a really busy summer with the girls home from school,...

For those of you that don't know about my diagnoses-especially my family and friends-I thought I would explain a bit. Syringomelia I was first...

I went to The Chiari Institute this Summer for a consultation with Dr. Bolognese. I get asked all the time "Was it worth it?" YES, YES, YES!!!!...

This is how I feel after the two neurosurgeons I have seen in Canada. After my initial diagnosis of syringomyelia, I was still left with a lot of...

On November 4, 2005. I woke up early at 5:00am, lifted my head off the pillow and turned it to look at my alarm clock. This insignificant action...