Caroline's Posts - Wellsphere

Hi all by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation Just a quick note to say that I haven't dropped off the face of the earth. It has been a really busy summer with the girls home from school, doctors appointments and long ter ... Read on »

What is she talking about? by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation For those of you that don't know about my diagnoses-especially my family and friends-I thought I would explain a bit. Syringomelia I was first diagnosed with a syrinx which is ... Read on »

Pilgramage to the Chiari Institute by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation I went to The Chiari Institute this Summer for a consultation with Dr. Bolognese. I get asked all the time "Was it worth it?" YES, YES, YES!!!! Worth every dollar and everyone ... Read on »

Dear Canadian Neurosurgeon, please proceed to the next century by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation This is how I feel after the two neurosurgeons I have seen in Canada. After my initial diagnosis of syringomyelia, I was still left with a lot of symptoms that did not fit wit ... Read on »

In the beginning......there was a syrinx by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation On November 4, 2005. I woke up early at 5:00am, lifted my head off the pillow and turned it to look at my alarm clock. This insignificant action changed the direction of my li ... Read on »

To Blog or not to Blog..... by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation That has been the question on my mind for almost a year since I was diagnosed with syringomyelia and then later chiari 0, cranial settling, occult tethered cord and ?EDS. I'v ... Read on »

Lest we forget by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation Just wanted to post a beautiful poem that reminds us to give thanks to all our veterans that sacrificed so much for our freedom. I know I take if for granted. It was written b ... Read on »

But you look fine by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation That' the problem isn't it. It's a blessing and a curse. I had never heard of an invisible disability before and now I have one. I look just like I always have and while that ... Read on »

Top 5 reasons my Cardiologist is the Best by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation 1. He listens! He actually listens and doesn't just wait for you to be finished talking so that he can carry on talking. 2. He is open minded and willing to learn. He doesn't ... Read on »

How to Get the Most Out of Your Doctor's Visit by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation Just thought I would share tips that have worked for me in the past.1. Bring someone with you. Never go alone. There are several reasons behind this. Going to see a specialist ... Read on »

Is your brain too big or is your head too small? by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation Not as catchy, is it? I have read with interest lately in so many places people referring to cm as their brain being too big. It is the title of blogs, t-shirts and newspaper ... Read on »

Chiari Times Blog by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation I wanted to draw your attention to a great new blog that has just started up written by Dr. Oro and is called Chiari Times. http://www.chiaritimes.com/ChiariTimes/Chiari_Times ... Read on »

Have I mentioned I love my cardiologist? by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation Ha Ha, I know that I have but I REALLY love him today. I finally had a chance to take the Beta blocker that he prescribed to me last week-Metropolol. I didn't want to take it ... Read on »

The Story of the Cracked Pot by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation I wanted to share this sweet little story that I came across. This story sends across a beautiful message that God has plans for all of us, even our qualities that appear to b ... Read on »

You mean I'm special? by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation You know that moment where you realize everyone doesn't have the same symptoms as you. This has happened a lot in the last year of exploring my symptoms and collecting diagnos ... Read on »

Looking to the future by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation Ever since I was diagnosed I have had worries about my two daughters although I have tried to put it to the back of my mind as a person can only handle so much at one time. T ... Read on »

Grieving by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation I think maybe sometimes we may think that grief is reserved for a death of someone we love. But grief occurs for many other reasons. In my old job of a nurse in the neonatal I ... Read on »

Anti-depressants for Chronic Pain by Caroline Patient Expert

1 Comment Posted in: Blog Posts in Chiari Malformation I have had several NL and pain docs recommend anti depressants for chronic pain. I tried them last year when a NL ordered 50mg of Amitriptaline(Elavil) for me to take at bedti ... Read on »

Just because it made me giggle! by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation "> Read on »

Let it snow, let it snow, let it snow! by Caroline Patient Expert

Posted in: Blog Posts in Chiari Malformation I have had shoulder pain on and off for probably 10 years. I never really know what sets it off? Sometimes I think maybe I have slept funny with my arm under my pillow. Whe ... Read on »

Caroline

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