First of all let me tell you how bad the state of Utah SUCKS for raising a child with a disability.
In our state, having a child with special needs, or major medical needs for that matter does not automaticlly quialify you for Medicaid or SSI. All of this goes by our income, and how much we make a month as a family. Even the Child Support that I get for our oldest son counts against our income. Also, Utah is one of the VERY FEW states that counts projected income, meaning that that if we expect any money for that month, then they use that against us even before we get the money.
I know, it's screwed up beyond belief.
Our only hope is that we will qualify for the spend down program. We will make 15.00 too much in May to qualify for CHIP, which is another program around here for children without insurance. But again, you have to fall within the income guidelines.
The worst part, is that if we lapse any insurance coverage for over 30 days for Rhett, he will be deemed as un-insurable due to a pre-existing medical condtion. ( His Down Syndrome ) We simply HAVE to keep some type of insurance on him. We just have to .
Our health care system is so freaking screwed up. Here we are trying to provide for ourselves and make a life for our family, and we get the boot on insurance for a child who needs it more than anyone. It's just not fair to Rhett.
You would think that the state and government funded programs would reward people for getting jobs, and help them out until they can get coverage on their own. Instead they make it awfully tempting for people to not work at all and become lazy bums just so that they can take care of their children the easy way.
Something needs to be done in this state, either that or I guess we need to move to a different state, just so that my child gets the health care he deserves.
Have I mentioned how screwed up this is?
First of all let me tell you how bad the state of Utah SUCKS for raising a child with a disability.
In our state, having a child with special needs, or major medical needs for that matter does not automaticlly quialify you for Medicaid or SSI. All of this goes by our income, and how much we make a month as a family. Even the Child Support that I get for our oldest son counts against our income. Also, Utah is one of the VERY FEW states that counts projected income, meaning that that if we expect any money for that month, then they use that against us even before we get the money.
I know, it's screwed up beyond belief.
Our only hope is that we will qualify for the spend down program. We will make 15.00 too much in May to qualify for CHIP, which is another program around here for children without insurance. But again, you have to fall within the income guidelines.
The worst part, is that if we lapse any insurance coverage for over 30 days for Rhett, he will be deemed as un-insurable due to a pre-existing medical condtion. ( His Down Syndrome ) We simply HAVE to keep some type of insurance on him. We just have to .
Our health care system is so freaking screwed up. Here we are trying to provide for ourselves and make a life for our family, and we get the boot on insurance for a child who needs it more than anyone. It's just not fair to Rhett.
You would think that the state and government funded programs would reward people for getting jobs, and help them out until they can get coverage on their own. Instead they make it awfully tempting for people to not work at all and become lazy bums just so that they can take care of their children the easy way.
Something needs to be done in this state, either that or I guess we need to move to a different state, just so that my child gets the health care he deserves.
Have I mentioned how screwed up this is?