I got a call from Rhett's Neurologist about two hours ago. Remember back at the first of the year they did an MRI on Rhett's brain, and it came back looking fairly well for everything that he had been through, except for there was a very small (a collid cyst is what I think they were calling it) on his brain?
Well they did a repeat MRI while he was under anesthesia for his spinal cord surgery. Nobody ever came in to talk to us about the results, and I never got a phone call so it just kind of slipped my mind.
Tonight I get the call from the neuro and he says that it's almost doubled in size, which he says is "concerning." My heart sank because my thoughts go directly to the C word. But he says that all of the labs they drew while in the hospital everything looked completely normal. The cyst is in the third ventircal of his brain? I think that's what it's called. It's in the center where it holds the spinal fluid.
He asks about how Rhett has been acting, and I told him he is a totally different kid, but in a good way that he is developing like crazy and just blossoming. So he wants to send it to a different Radiologist over at the University of Utah to see what he thinks about it. We might be looking into a repeat MRI soon.
I don't understand this, and he was very vague with me on the phone. I don't see how there could be anything wrong with his brain the way he is doing so well, I mean you all saw the video of him talking and lifting his legs, just acting totally normal right?
I am just baffled. Anyone got any ideas as to what this may be? Could it be something just harmless?
I do know that he said they may need to do surgery to drain it.
As if he doesn't have enough scars on him. I guess it's okay though if it means it's not the C word, ANYTHING but the C word.
Well they did a repeat MRI while he was under anesthesia for his spinal cord surgery. Nobody ever came in to talk to us about the results, and I never got a phone call so it just kind of slipped my mind.
Tonight I get the call from the neuro and he says that it's almost doubled in size, which he says is "concerning." My heart sank because my thoughts go directly to the C word. But he says that all of the labs they drew while in the hospital everything looked completely normal. The cyst is in the third ventircal of his brain? I think that's what it's called. It's in the center where it holds the spinal fluid.
He asks about how Rhett has been acting, and I told him he is a totally different kid, but in a good way that he is developing like crazy and just blossoming. So he wants to send it to a different Radiologist over at the University of Utah to see what he thinks about it. We might be looking into a repeat MRI soon.
I don't understand this, and he was very vague with me on the phone. I don't see how there could be anything wrong with his brain the way he is doing so well, I mean you all saw the video of him talking and lifting his legs, just acting totally normal right?
I am just baffled. Anyone got any ideas as to what this may be? Could it be something just harmless?
I do know that he said they may need to do surgery to drain it.
As if he doesn't have enough scars on him. I guess it's okay though if it means it's not the C word, ANYTHING but the C word.