Have you ever met Parker - Well if not, you should stop by and say hi, because him and his mom Tammy are the most amazing family I have ever met. I love them for many reasons, Parker and Rhett share alot, they have the same cardiologist, ENT, and general surgeon, they are only a year apart, both have extra chromosomes, Parker has had a tethered spinal cord, they both have pulmonary hypertension, they both love books, and cars, and Elmo. But besides all of that, they both are loved beyond any shadow of a doubt by their families.
Recently Tammy wrote this post , this could have come exactly from my mouth, as I have been dealing with the exact same thoughts. See we both live by each other, and we both seem to be getting the same ahem.... crap ....from the same people.
Tammy is an inspiration to me. She is the one I call when I am freaking out about Rhett, wondering if I have broken him or not. She is the one who called me the day that Andy had his back surgery and knew I was doing everything solo, just to make sure I was okay. When Rhett coughed out his NG tube, she was the first person I thought to call, because she has been there and done that.
Have I mentioned that she is amazing? Cause she is .
I am so grateful for Tammy and her love for Parker. She has been since an inspiration, and has helped me through so much.
Tammy put it best when she said that she can't fake Parkers trach, or his G-tube, it's the same way that I can't fake Rhett's NG tube, and his oxygen. The thing is, is that although I also have thought of not blogging about Rhett anymore just because of the reasons that Tammy wrote about , I know that there are too many people out there who have just happened upon my blog, who have emailed me saying that they are dealing with the same issues, and I have gotten resources for them, and they have shared with me.
I blog for me, and for my family. I blog to show people how loved Rhett is, and that having a child with an extra chromosome is one of the most amazing things that has ever happened to us. I love Rhett just the way he is, even if he does have medical problems. It's not about attention, it's about awareness, and the love we share with other people who have a child with either the same medical condition, or with Trisomy 21.
Thank you Tammy for helping me understand my child, and for helping others who deal with the same issues that Parker has.
Have you ever met Parker - Well if not, you should stop by and say hi, because him and his mom Tammy are the most amazing family I have ever met. I love them for many reasons, Parker and Rhett share alot, they have the same cardiologist, ENT, and general surgeon, they are only a year apart, both have extra chromosomes, Parker has had a tethered spinal cord, they both have pulmonary hypertension, they both love books, and cars, and Elmo. But besides all of that, they both are loved beyond any shadow of a doubt by their families.
Recently Tammy wrote this post , this could have come exactly from my mouth, as I have been dealing with the exact same thoughts. See we both live by each other, and we both seem to be getting the same ahem.... crap ....from the same people.
Tammy is an inspiration to me. She is the one I call when I am freaking out about Rhett, wondering if I have broken him or not. She is the one who called me the day that Andy had his back surgery and knew I was doing everything solo, just to make sure I was okay. When Rhett coughed out his NG tube, she was the first person I thought to call, because she has been there and done that.
Have I mentioned that she is amazing? Cause she is .
I am so grateful for Tammy and her love for Parker. She has been since an inspiration, and has helped me through so much.
Tammy put it best when she said that she can't fake Parkers trach, or his G-tube, it's the same way that I can't fake Rhett's NG tube, and his oxygen. The thing is, is that although I also have thought of not blogging about Rhett anymore just because of the reasons that Tammy wrote about , I know that there are too many people out there who have just happened upon my blog, who have emailed me saying that they are dealing with the same issues, and I have gotten resources for them, and they have shared with me.
I blog for me, and for my family. I blog to show people how loved Rhett is, and that having a child with an extra chromosome is one of the most amazing things that has ever happened to us. I love Rhett just the way he is, even if he does have medical problems. It's not about attention, it's about awareness, and the love we share with other people who have a child with either the same medical condition, or with Trisomy 21.
Thank you Tammy for helping me understand my child, and for helping others who deal with the same issues that Parker has.