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Carrie A.'s Twitter Updates

Long term, evidence-based depression treatment effective and sustainable for teens http://bit.ly/2GQp9J 8 days ago
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Context and culture matter

Posted Aug 19 2009 10:05pm
I found this Mind Hacks post ( Seized by voodoo spirits ) interesting on several levels. As someone who has epilepsy--though, fingers crossed, my seizures will remain in the past tense--I relate very much to the search for a "cause." Were my seizures because of the eating disorder? Because of medication? Something else? My seizures began suddenly and with absolutely no warning, coming and going seemingly at random.* Both my family and I were spooked and frightened.

So I read the report of the Haitian woman attributing her epilepsy to spirit possession with no small amount of compassion. And yet I scoffed a bit. As a lifelong skeptic (a cynic when I'm in a bad mood), I find the idea of spirit possession almost laughable. It's kind of like seeing the Virgin Mary in your toast - I mean, the trinity isn't the Father, the Son, and the Holy Toast, amen.

The exact logic and reasoning behind this woman's attributions aren't exactly the point of this post. What got me thinking was the last few lines written by Vaughan:

The cases are interesting as they highlight how easily the 'possession' theory fits with the unpredictable course of epilepsy and its effects when it seems to briefly 'take over' the body and mind of the affected person.

It raises the question of how much observations of epilepsy, a condition that affects approximately 1% of the population, have contributed to the idea of possession throughout the world.

Ideas of epilepsy-as-demon-possession were common in Europe in the Middle Ages and persisted into the nineteenth century. And it made some amount of sense. Human beings like to know "why." We just do. If we can't find an actual reason why rain falls and the sun rises and little Jimmy occasionally falls to the ground and starts twitching, we'll grab ahold of whatever's handy to try and explain it.

This kind of explanation is also common in eating disorders (you didn't really think I wouldn't mention EDs, did you?). When I read stories like this, that are subtitled "Anorexia teenager nearly died to look like Posh Spice Victoria Beckham," I realize how much culture makes a difference in how we interpret an illness.

I don't think this girl is "wrong," per se, because I'm not her and I don't know everything that motivated her. Demons could cause epilepsy- I can't say for sure that they don't, but I can say that there isn't any evidence of this. The same for an anorexic wanting to look like Posh Spice. It's her experience. It's valid. And it does make some amount of sense.

Just as the Haitian woman's beliefs affected her treatment (local medicine man vs. medication), I think our interpretations of eating disorders affect how they are treated. How much control over his/her own behaviors does the sufferer have? What should be the priority- stopping symptoms or more traditional psychotherapy? What causes eating disorders? What is the effect of culture? What about biology?

These are good questions to be answered. Although I have precious few answers, I do know this: EDs are far more complex than a Spice Girl Complex.

*Well, it didn't seem very random at the time as they came and went at about five month intervals, just short of the six month clean slate I needed to get my driver's licence back. Sigh. It does help explain my near-pristine driving record, however.
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