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I recently discovered this very thought-provokingsite, e-Patients.net, dedicated to empowering patients to become educated and active participants in their own health care, primarily by utilizing the educational and social connections made possible by internet resources. These are pretty lofty goals. Especially when some physicians and other health care providers adopt an attitude which can range from indifferent to offended by the well-informed healthcare consumer. The authors of e-Patients, many of which are physicians, look to change those attitudes, and in doing so, improve the quality of medical care. (Thanks to e-Patient Dave deBronkart for sending the link to me.) The physician responsible for creating the e-Patient concept, Tom Ferguson, was a multiple myeloma patient and utilized his own principles and concepts as an e-Patient in dealing with his disease. This information about Dr. Ferguson was taken from the e-Patients site: Dr. Ferguson and a group of collaborating authors produced a fascinating white paper, foundhere, which expands and discusses the e-Patient concept. From the introduction: The paper goes on to elaborate the authors' concepts: As the author of a patient centered blog I am excited and gratified to read of this movement in healthcare. Those patients in the blogsphere and cyberspace have seen this need and have been working onourside of the solution for years. It's good to see healthcare providers step up to to the challenge. I encourage readers to visit this site and take the time to read the white paper. |
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