As of today we have new seizures. This has happened four times today. Three of the times while I was holding her, and once while she was sitting on the floor playing.
Her head drops straight down super fast, her arms come out to her sides. It lasts maybe two seconds? Then her head comes back up and she smiles at me like nothing happened.
Drop seizures? Something else? UGH! I don't know. I can't blame it on the Lamictal not working, because we don't even have it yet! That's right, the insurance denied it. First they denied the name brand, and requested that the doctor allow them to fill it with a generic. He agreed, then they refused the generic. They said it needs a prior auth. So we don't have that on board yet, so I don't know if it would be helping or not.
And ... the UTI she had last week? She's been on the wrong antibiotic for the last week. Which explains why her pee is still funky and she still feels like crap. I finally called the pediatrician last night, because no one ever called me to give me the culture results. He said "What? The urology nurse didn't call you last Thursday??" He was furious. Turns out that the UTI is not responsive to Bactrim, the med they put her on last Monday. And the urologist was supposed to call me Thursday to tell me this, and call in some new hardly ever used drug. Which never happened. So the pediatrician called it in last night, and of course the insurance denied it and now we are waiting for THAT appeal also.
Seriously, MediCal, what the hell. It's not like she's having seizures or anything! Oh wait ......
I just left a message at the neurology office, explaining these new spells. I don't like them. I don't like that every week we are seeing new kinds of seizures. I hate them!
Her head drops straight down super fast, her arms come out to her sides. It lasts maybe two seconds? Then her head comes back up and she smiles at me like nothing happened.
Drop seizures? Something else? UGH! I don't know. I can't blame it on the Lamictal not working, because we don't even have it yet! That's right, the insurance denied it. First they denied the name brand, and requested that the doctor allow them to fill it with a generic. He agreed, then they refused the generic. They said it needs a prior auth. So we don't have that on board yet, so I don't know if it would be helping or not.
And ... the UTI she had last week? She's been on the wrong antibiotic for the last week. Which explains why her pee is still funky and she still feels like crap. I finally called the pediatrician last night, because no one ever called me to give me the culture results. He said "What? The urology nurse didn't call you last Thursday??" He was furious. Turns out that the UTI is not responsive to Bactrim, the med they put her on last Monday. And the urologist was supposed to call me Thursday to tell me this, and call in some new hardly ever used drug. Which never happened. So the pediatrician called it in last night, and of course the insurance denied it and now we are waiting for THAT appeal also.
Seriously, MediCal, what the hell. It's not like she's having seizures or anything! Oh wait ......
I just left a message at the neurology office, explaining these new spells. I don't like them. I don't like that every week we are seeing new kinds of seizures. I hate them!