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Rash is worse now

Posted Nov 07 2009 10:02pm
(UPDATED TO ADD) - I just got off the phone with the neuro, he looked at this pictures in his email. He said it still looks okay to stay home. He gave me the warning signs to look for, for steven johnson syndrome. We are to watch closely for chapped lips or sores on her lips, and anything abnormal near her eyes or vagina. If anything like that pops up, we have to go to the ER. How much sleep do you imagine I'll get tonite? I am going to sleep on the floor in her room and set my alarm clock for every two hours. Looking up steven johnson syndrome online scared the crap out of me!




We gave her Benadryl at 12 noon, and he said to administer it every 8 hours. It's 7pm, so we have an hour to go. The first dose didn't help the rash at all, in fact it's much worse now. Any part of her that wasn't covered before, is covered now. And it's much brighter.

She was grumpy all afternoon, but we haven't seen any sores in her mouth, which is what he told me to look for.

I just put her to bed with her sleepytime meds (she won't fall asleep without drugs). I just emailed some pictures to the neuro, and paged him again. I'm worried about going to sleep, if the rash is getting worse.
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