A comparison of bagssent from Amy on the right is the usual size of my daily bag, however the quality of bag differs from mine with it super soft outer shell, it is like comparing cashmere to steel wool with my usual bags.
Well Im incredibly excited and it because of Amy Yes You Hun. Those products you sent me are supreme. Especially the little tiny cutie baggies. They are perfect for my issue on a daily basis. Because my stoma leaks periodically during the day I don't need the huge kick arse bags I have been using, now I'm using the little tiny ittie bitty bags.
This one has a soft padded stench absorbent inner core, holds up to 100mls. It is supposed to be for short term hourly use, but is perfect in my case for extended amount of time. Its part of a two piece system. It is great on a hot day like yesterday as its super soft outer core didn't make my skin sweat.
This wee gem I wear all day, as it has a drainage port. Over night I have attached the night bag supplied by Amy as this only also holds 100mls.
I am treating them like gold as we don't get these products here. I looked online and they seem to be British or U.S based. For a box of 30 they are around $100.00 U.S. I am incredibly grateful, these solve the leakage issues without being burden some. Having a bag hanging halfway down my thigh (due to stoma placement) is plain stupid when all I needed was these perfect wee gems. I showed my District Nurse who deals with my P.I.C.C and we went excitedly through the package going ooh,and ahhhhhhhhhhhhhhhhhhhhh.
Thank you Joey for your award :) Shes a fighter for a different cause being Brittle Asthma.
"The award says .."This blog invests and believes in the PROXIMITY-nearness in space, time and relationships. These blogs are exceedingly charming. These kind bloggers aim to find and be friends. They are not interested in prizes or self-aggrandizement! Our hope is that when the ribbons of these prizes are cut, even more friendships are propagated."
Finally when I was in Hospital(recently) I met a patient who is a Medical Professional. (patient A) They have been down a similar track to mine with a leaking Urinary Diversion which was converted into an Ileal Conduit. They have learned over the years what works for them and what doesn't.
They have managed to take control of their disease and life to enable them to continue working. Like many of us this patient had to battle with the medical team to be able to go home on the right self administered medication.
In the end both the patient and I barraged the poor House Surgeon with our opinions on our own care and chronic illness. The poor buggar looked swamped ,but understanding. Even though they are trained to see us only in text book form, they really should think outside the box and not pigeon hole all patients. Because when a patient is exposed to various medications over the years, we can develop drug reactions, allergies (no digs ,allergy haters) or a drug becomes inefficient.
There were three of us on the ward with various Urinary Diversions.
The other patient(Patient B) had a different medical condition which meant they were dependant on others. However they too tried to take control of their illness and speak up for themselves. It didn't work to well for them and I could see through the games being played with the medics, basically passing the buck. The patient couldn't see it and had total faith in their team. Until it turned to crap for them.
I tried gently to explain to her the process that sometimes happens in Hospitals.
That the House Surgeon can only do what the Registrar says is O.K, and the Registrar can only do what the Consultant O.K. House Surgeons have no real autonomy to go and change anything(living with a Doctor for 7 years helped me understand this clearly).
Here is what happened.
Consultant tells long term patient of theirs a plan for their care.
Changes mind (within 10 minutes) doesn't want upset angry patient yelling or crying at his change of heart, hastily passes responsibility onto Registrar.
Registrar cant be bothered dealing with distraught patient so sends in pleb to give bad news.
House Surgeon tells patient everything has changed, patient gets upset (expectedly) and goes onto tell me she thinks their communication lines are down.
Patient A and I know this isnt the case and its a case of passing the buck above.
The next day the Registrar confirms with patient B that the Consultant did indeed foist her case onto them to have full autonomy.
Point in hand.
Patient was confused, angry and upset (understandably) thinking and blaming the House Surgeon initially for getting it all wrong. When in fact the powers that be couldnt' be bothered explaining at the time they didn't agree with what the patient wanted.
Spines needed for emergent case of useless communication STAT.
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A comparison of bagssent from Amy on the right is the usual size of my daily bag, however the quality of bag differs from mine with it super soft outer shell, it is like comparing cashmere to steel wool with my usual bags.