One of my pet projects is trying to get my closest family members to understand that I do have a chronic illness and sometimes it takes it toll on me. That they do need to pitch in and help me because I get tried on a level that other people do not, the kind of tired sleep does not cure.
This little story about the spoons really explains it well.
MS is an invisible disease and being such, my family tends to think I can just go, go, go and do, do, do. Usually it is not until I break down into tears of frustration because they are all lounging around and I am still working my fanny off that they remember I am the one with a chronic illness.
The internet can be a horrible place when one is sick because the slightest little new thing leads to the Google bar...it does.
I have been feeling weird things in my mouth and so I have goggled them.
WHY!!!!
Now any sane person knows better than using the internet for health searches...but yet we do it. That is how people find my blog, daily.
I goggled 'coughing and ms.'
Decided I was dying and then goggled 'cheap wills.'
Had another cup of coffee. Then thought, "oh Christina Brown, get real, it is just phlegm in your throat."
Went and threw the ball to my kids instead.
Damn Google.
But still, my loved ones do not get what it is like to be me, they do not understand MS pain, fatigue, numbness, vertigo or fear.
Oh the well meaning advice of the internet.
One of my pet projects is trying to get my closest family members to understand that I do have a chronic illness and sometimes it takes it toll on me. That they do need to pitch in and help me because I get tried on a level that other people do not, the kind of tired sleep does not cure.
This little story about the spoons really explains it well.
MS is an invisible disease and being such, my family tends to think I can just go, go, go and do, do, do. Usually it is not until I break down into tears of frustration because they are all lounging around and I am still working my fanny off that they remember I am the one with a chronic illness.
The internet can be a horrible place when one is sick because the slightest little new thing leads to the Google bar...it does.
I have been feeling weird things in my mouth and so I have goggled them.
Now any sane person knows better than using the internet for health searches...but yet we do it. That is how people find my blog, daily.
I goggled 'coughing and ms.'
Decided I was dying and then goggled 'cheap wills.'
Had another cup of coffee. Then thought, "oh Christina Brown, get real, it is just phlegm in your throat."
Went and threw the ball to my kids instead.
Damn Google.
But still, my loved ones do not get what it is like to be me, they do not understand MS pain, fatigue, numbness, vertigo or fear.
Oh the well meaning advice of the internet.