I am still to this day experiencing varying degrees of post traumatic stress disorder from this experience and that is on top of my already surviving thirteen years of being completely disabled from CFIDS. So I now KNOW the 'fatigue' part of the title of this illness needs to change for the benefit of everyone living with this illness along with the friends and loved ones that support us along our journey.

I am now completely disabled because of CFIDS but the 'fatigue' part of the name used to identify my illness is just so not adequate.