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No sleep, quiet and more.

Posted Oct 23 2008 9:05pm

I am a few days post weaning from the Keppra.

Yesterday, I had a scary brain moment, in which I picked up the phone and dialed Bob at work just to tell him that I was having a scary brain moment and to listen while my brain fell out.  It may have been an actual withdrawal from the medication, further proof that I am never, ever going to be a junkie.  It was NOT a hypoglycemic event, I had NOT eaten anything.

I was in the middle of a instant message conversation, when I realized that my brain was shutting off, and I walked away, checked the safety of the kid, went to the kitchen, got more swooshy and quickly realized that I HAD TO GET AWAY FROM THE GRANITE, grabbed the phone and sat on a soft spot.  (I had a grand mal seizure in the kitchen before and I still don't know if I hurt myself, because I woke up in my BED back in the spring.)

I sat in a soft chair until the feeling passed, and my brain came back a bit.  It was a few minutes, and then I was pretty much okay for the rest of the day.  I still am a bit fuzzy, not normal yet, though I wasn't ever, so do I expect a miracle?  Heh.  Not only THAT, but I am still doped on Topamax, and that makes a lot of people absolutely STOOPID.

I miss the Ritalin days.  I wonder if that crap would throw me into a seizure now.  Probably.  Fun times.  Yeah, I took Ritalin for a very short period of time when I was in high school, I was diagnosed with ADD.  (It worked, my grades, instantly improved, when I quit taking it?  I barely graduated.) 

Now that the big kids are back in school, we are getting out of bed a little earlier than all summer long, we all need to get to bed a bit earlier.  Luckily a smallish person now sleeps pretty well through the night, but a few small canines wake up and yelp at night in the crate.  Adding that to the fact that I generally do not turn in until midnight, and I get up by six am, I need a nap or I need to go to bed earlier.

The neurologist and I had a few emails back and forth yesterday, in which I reiterated my theory about my brain being unwell due to my state of nutrition. 

He asked "who is taking care of my GI issues?" 

I replied to that, "Noone, really," and explained further that I had 'fired' my PCP.  (Which basically just means I wasn't going back because she called me crazy, because I explained my symptoms in detail to her and refused to look further for cause, and I am still here with the same problem.) 

He said, "You must have a PCP," to which I said, "But, I got a new one, and my appointment is in A YEAR FROM NOW."

What?  I have been going to this medical center since the AGE OF FIVE, with a break or two with insurance changes, and it takes ONE YEAR to get an appointment to change doctors.

He gave me the names of some doctors at his hospital that could be my PCP's if I cared to go there for care, and a GI specialist.  While getting there is a much bigger deal, perhaps the care will be more on target, assuming I don't get another doc that ends up in rehab.

I called this morning, and I have two appointments, a PCP visit next WEEK and a GI doc in mid October.  (That's a bit different than a year, eh?)

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