Zipperhead ..'s Posts

Today's stomach exploratory by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation Cross-posted at FB: Got initial all-clear, then got report with pics and details. Tummy lining was swollen, so a precautionary biopsy was taken; esophagus was inflamed and ha ... Read on »

Procedures and loneliness by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation I love that despite having dozens of local people I know on FB, and that I have shared about Friday and Wednesday's exploratory surgeries multiple times (quietly though, tryin ... Read on »

Guts update by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation The H. Pylori, bloodwork, CT w/iodine, and gallbladder ultrasound are all over. Strangely enough, though I've had iodine before, I am now officially allergic to it, having had ... Read on »

Meet neurosurgeon in a.m. re: br ... by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation Meet neurosurgeon in a.m. re: brain rejection (rephrase: brain/spine rejecting hardware, not rejecting brain) & shunt surgery. Also have H. Pylori testing. Days & test ... Read on »

As the stomach churns by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation Dr results from Fri p.m. appt: said if I was his daughter, he'd be worried. In a nutshell, he ordered colonoscopy, endoscopy, h. pylori breath test, CT w/iodine, abdominal ult ... Read on »

Brain & spine hardware rejection, depression & denial by Zipperhead .. Patient Expert

1 Comment Posted in: Blog Posts in Chiari Malformation Earlier this week I was to be seen by a neurosurgeon on his very first day in this town, but he unfortunately did not make it to town yet. So I am seeing someone Monday instea ... Read on »

Part 2 by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation In regards to the post below, please understand it was written as a way to vent my own frustrations. It was not meant to be a personal attack against anyone in any way, shape, ... Read on »

Anger, the evil emotion by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation I am reading the book, Handle with Care, by Jodi Picoult. This is the 3rd book of hers that I have read in the last month. She has a child who had multiple surgeries in a shor ... Read on »

Taking control by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation I had my monthly neuro appointment today and instead of being scheduled for my 2-3 day in-patient stay at the hospital as we were planning, NL came in and said he'd been think ... Read on »

Not one of my "patient" readers? Count yourself lucky by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation LETTER TO PEOPLE WITHOUT CHRONIC PAIN: Having chronic pain means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most p ... Read on »

Social Networking & Denial by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation A couple friends wanted me to set up an account at one of the many popular social networking sites so they could follow my health stuff more often. I wanted to say, "Abou ... Read on »

Surgery 16 update, ER trip, seizures & such by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation I made it through my 16th surgery about 6 weeks ago. I had a post-op check today; it was originally 2 weeks ago but they said I hadn't made enough progress and made me come ag ... Read on »

Under the Knife Again by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation I'm having surgery again next week, my 16th. At least this time it does not involve shaving my head. It does however involve a lot of risk, a big incision, general anesthetic, ... Read on »

Help Find Laura Nimbach by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation This is the Laura Nimbach, sister of a crafting acquaintance I met. This is the flier from the police department. Please consider posting this at your blog or social networkin ... Read on »

Assistance Dog update by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation For anyone late in the game, my Rhodesian Ridgeback Shelby has 2 certification levels already, and is currently working on her 3rd. She is my assistance aka service dog. Due t ... Read on »

FYI by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation I am updating a couple small things here and there on the site. I am not giving personal updates on my own situation, not on this blog anyway. Things are not going well and I ... Read on »

that's it by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation I won't be posting for awhile. Just a heads up b/c some of you have this blog on your list and so you can take it off and not waste any time looking for updates. There are thi ... Read on »

Shelby's class by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation I had class today with Shelby. It wasn't easy, being 7 days out of surgery. Thank goodness for wheels! My head and arm are exhausted but thankfully Shelby was a great lil girl ... Read on »

It's been 6 days since sx. Arm i... by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation It's been 6 days since sx. Arm is slightly better, not a whole lot. I'm sure it'll get there with time. It's always strange to be told by a world-famous surgeon if i hadn't h ... Read on »

Home again by Zipperhead .. Patient Expert

Posted in: Blog Posts in Chiari Malformation We're back from Maryland. Surgery went well. In a nutshell (well as brief as an Ehlers-Danlos nutshell can be anyway), the artery was 'severely' compromised, muscle was an abn ... Read on »

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